Monday, July 26, 2010

comming home...

i have been home in Ariz. for a few days now...i will be the first to admit i was quite nervous... this is the first time i have been home since my papa passed... i worried about how i would feel being in the house... seeing the sink we spent hours at... seeing his recliner... seeing all of the empty space he left.... while it has been hard it has also been healing.. we have been able to talk about him.. not always accompanied by tears.. we have laughed.. cried.. and shared...
being in his truck was hardest.. it smells like him... like work.. like desert dust...
it doesn't help that my brother in his masochistic style.. insists on listening to dad's music at most times...
i have yet to visit the grave site... more apprehension... not knowing how i will react is the hardest part... odd that reacting is the easiest, most natural thing to do...
i have done very well, considering... and i was thinking about it.. more than likely while i was supposed to be listening to someone...i apologize in advance for being a bit spacey, as i have a lot to contemplate... but i digress... i think i have been able to simply feel because he is very much a part of us.. and the house... i know my dad is in paradise.. more than likely cooking fish over a camp fire... but he is here as well.. in the form of memories... my papa wore hats (ball caps) all the time.. and there is at least one hat in every room.. as if he left them there...
i also believe... as many people remark on how well we are doing as a family.. that it is a testament to my papa.. we were not left with hurt feelings, regrets.. ugly memories... he truly left us in tact with beautiful memories and knowing with all our souls that he loved us...
here is hoping i can remember this when i visit his headstone....

Tuesday, July 13, 2010

music to our ears...

after the last post i felt i needed to write something less sad.. gotta have balance right?

we did a lot of bed hopping in my family... before my brother was born my mom and i would switch because she couldn't sleep with my dad's snoring.. sometimes it was so loud it vibrated against the walls... i got so used to my dad's snoring that i slept with him for mannnnyyy years.. until my brother took over... poor dad... because my brother has always been a wiggly sleeper....

so last night it was raining on and off... more like pouring and pounding my rooftop on and off... and it made my husband's snoring erratic... i just could not get to sleep.... so as always i go to thinking about my papa...

my brother and i have agreed... it is easier to fall asleep with steady snoring.. he once said my dad's snoring was music to his ears! music.. i don't know about that... but it certainly held its own lullaby... maybe of security... and hilarity

a few years ago my dad and brother came to visit my husband and i.. we rented a cabin up north and spend the weekend there... the cabin had these weird short walls that created an open gap between our rooms... my brother and dad were in one room.. my husband and i were in the other... my dad was the first to fall asleep and started snoring.. my husband.. unaccustomed as my brother i and i were... could not sleep through the snoring.. especially once my brother joined in... i told him to close his eyes and eventually he would fall asleep... moments later i found out neither of us would be sleeping... my dad started laughing... like actually laughing.. there would be a snore with his inhale.. but the exhale was laughter.. and not quiet giggles... real laughter... it was infectious laughter.. because my husband and i could not stop laughing... we came up with dream scenarios that my dad could have been laughing at.. in the morning we told my dad about it.. he didn't believe us... while my brother slept through that night he was familiar with this laughter.. he walked in and said he'd heard it before.... no big deal.. which sent my husband and i into more fits of giggles

years later as my dad became more and more sick we, as a family, started to miss his snoring... one afternoon nap my mom caught him snoring... she told him when he woke up and he was excited... he said "yes, that means i got some goooooood sleep!"

Wednesday, July 7, 2010

on God.. and faith part II

i am not sure where it comes from... the day will have gone well... i will have gotten through it unscathed... then.. i lay down to fall asleep.... i am sure to tire myself out completely.. so i know i am tired.. i know i should be able to sleep... a little tossing...a little turning.. then a flash.. the memory that sends pain to my core.. the memory of my dad in his last hours... unresponsive but his mouth searching for water... i used the stupid ice chip sponge to put water on his lips and gums but he moved his head... grunting.. he was so thirsty... and i was helpless... i don't know who noticed.. who knew... and i don't share this at all... because even now.. typing it.. so much is going on inside... a whole storm of emotions...... this is the only moment...after all he had already gone through.. when i questioned God.... when i was angry with God for reducing my dad to this... to allow suffering... needlessly..i had done really well until that point in understanding that cancer was not something God gave people.. was not a lesson to be learned.. was just a monster in and of itself... but i asked.. why not just take him now.. why allow him to lay there.. helpless. thirsty... why put us through this?
so my night was spent thinking... and reliving these questions...and sorting out some other stuff...my relationship with God is personal.. and new... i am finding my way through this in the best way i know how... i don't know if i will ever be open to religion.. i see what it does to individuals.. i see people using religion to judge, condemn and justify horrible things... i understand that individuals never represent the whole... but it causes me to be wary of it all the same... but my dad, being new to Christianity... was obviously not new to virtue.. and i think if i can try to emulate his virtues i will find my way....

fellowship without judgement- when my dad had to stop working he would spend much of his time on the front porch reading and watching the neighborhood.. he befriended some Jehovah witness women... even after he began to have fellowship with his church they did not forget about him... one day he was in the shower and i answered the door.. they asked about his well being and left a scripture for him to ponder... when he got out of the shower another person made a snide remark about him talking with them...later he told me that he just wanted to talk about the bible, he didn't care with who...it wasn't a matter of being swayed toward any kind of religion.. it was about gaining understanding in any way....and that i should not judge wrongly like that other person had
honesty- my cousin was reading the bible to him one afternoon.. i suggested they read the story about the 4th man in the fire (my favorite.. plus it's a good johnny cash song).. dad had never heard it... in the story three men are brought to the king for refusing to worship a Babylonian god...they told the king that they did not fear the firey furnace they were to be thrown into because they had faith that God would protect them.. the furnace was so hot that it burned the soldiers who took the three men to the fire... and killed them.. the men came out of the furnace unburned and not even smelling like fire...while the men were in the fire a fourth man was seen (usually inferred to be God)... anyway after the story had been read my cousin asked my papa if he would have that much bravery to stand up to the king and be thrown in the fire... my dad thought a bit.. and said.. no... he would bow to the Babylon god.... he somewhat shocked my cousin, who was also his preacher and pillar of faith.... we laughed... he was honest in his answer... it was not in question of his faith... my dad had a very strong faith in God... it was a question of bravery and fear...

i think my dad's virtues are better followed than any religion.. and while someday maybe i will find my way toward a church and religion.. i will in the mean time work on my personal relationship and understanding of God.. maybe until i have faith enough not to lay awake questioning and reliving an all too painful moment...


Thursday, July 1, 2010

6 months

dear papa,

another month has passed.... and nothing has changed.... my world is standing still... i am in a bubble slowly working my way out... i have begun to forgive which i think will help.. and which i think you would like... i wish i had more of your non-judgmental heart in me... it is something i will continue to work on....

we had a bit of a dramatic... albeit hilarious event... in the house... your super smart son-in-law dropped a huge knife on his foot, butt first, and broke his last two toes... he writhed around on the ground yelling and cussing... i threw him a bag of frozen peas and walked out... i couldn't stop giggling... and i was thinking of you and your foot/heel problems... i don't think you ever writhed around on the ground yelling and cussing... i know you went on a two hour hike with us... through the pain... even with chemo and the horrible pains of surgery and ever growing tumors... i don't you ever writhed around on the ground yelling and cussing... i will admit i lost my patience with him... but i can hear you saying "pobrecito".... so i am STILL trying not to compare him to you.. or anyone else to you... cause in that battle.. they will always lose....

speaking of feet... mom and emilio went to California this week.. they are still there... and the other night.. for a fleeting moment.. i did it again.. i forgot you weren't there... i thought.. for just one second... about calling to see how you were getting along with all that walking they did in San Fransisco... again my heart sank... when i remembered yet again... you weren't there...and i wondered when that would stop... but i still do it with Nana and Tata.. so i suppose it won't.. ever stop happening

i think back to last year... at this time.. this day.. i was home with you... we, no doubt, had breakfast together... i can't pinpoint the day.. the actual day.. and i hate that.. i want to remember every moment with you.. but my memory fails in that respect... my brain is too caught up in missing you...

i love you papa,
ana marie

Monday, June 28, 2010

healing in forgiveness

i read The Shack... which i didn't like at all... it was an attempt to take philosophical questions that do have necessarily have to have answers, and simplify it all.. it was trite in its attempt at a conversation with God... i will never understand why people flock to "answers"... when the questions are far more important...
anyway.. what i did take away from it was a personal need to forgive...i will be the first to admit that i hold a lot of anger... it fuels me... it allows me to work full speed.... but unless i get rid of it (even a little of it) i can not heal....truth be told healing is scary in that i am afraid to forget him... and to forget this feeling... but... he would want me to move forward (never move on.. move forward)... so i have to forgive....
today i wrote a letter to his oncologist... in it i forgive him.. for his tunnel vision in treating him...for his lack of understanding kidney cancer in it's specificness.... in it.. i ask that he look into reforming IL-2 eligibility criteria... i ask that he review the use of Sutent... neither of which were used on my papa... i informed him that my dad would have had hot lava pushed into his veins if it meant he would have a few more years, months.. even days... i also tell him that i do not not blame him for my dad's cancer.. nor his demise.. i have to believe that my dad would have taken from us even if he would have qualified for IL-2 or had tried Sutent.. but he should have been given the opportunity to try them as treatment options... it breaks my heart that when he was told there was nothing else they could try.. it was a lie... there were options... i also reminded him the power he holds over oncology patients who put their faith in him to fully inform them...it was a letter a long time coming...
i also am going to take this opportunity to formally forgive people in my life that, at the time, i felt did not give us the support we needed.. it was selfish and close minded for me to believe that you could make it better simply by "being there"... blame had to go somewhere and it went to some of you.. i understand now that sometimes people don't know what to do or say... truth be told some of that anger came from jealousy that this did not affect your life as it so twisted mine... what kind of friend am i to only love those that are there for me... friendship is not based on reliance... neither is love.. i forgive and love you!
i will have a harder time forgiving those that i feel did my dad wrong by not being there for HIM as they could have.. i will have a harder time forgiving those who disguised their need to be the center of attention as "caring"... i will have a harder time forgiving those who have abandoned what is left of my family.... but.. the forgiveness will come.. because i believe that those that i will have a harder time forgiving do not know what hurt they've caused... so what is the point in hanging onto that anger? it will come.. i'm sure it will... and today i feel lighter... i feel a pebble sized void has been filled in the giant whole my papa left me with....

Friday, June 25, 2010

like watching Nature





this picture always makes me laugh.. YEARS ago..we were in old town Tucson... he snuck away from the group and had this picture taken... i remember wondering.. what was he going to do with it? well he framed it of course.. and hung it on the wall... on that wall was also a blown up picture of his Jeep... who in the world takes a novelty photo alone? my papa that's who! many years after that he had one taken with my brother.. but that is his story to tell







it is always funny to me when people say "i didn't know that about him" or "he was so quiet"... i just chuckle to myself... and it makes me sad for people who didn't really know him.. or understand him....
sure.. he was quiet and reserved... until he stood up for the sole purpose of doing a funny little dance... (ok side note.. sometimes i think these entries are going to light hearted and i will giggle throughout them... but here i sit crying.. and glad i can type without looking at my fingers or the screen) i digress.. sometimes being with my dad was like watching Nature (as my brother once said)... you had to be still.. you had to watch wait and listen.. and he could burst out of the quiet reserved shell....
something simple like putting chlorine in the pool could cause of sting of snarky sarcastic comments (are you planning on getting any of that chlorine in the pool?).... as can driving directly over potholes (is it your goal to hit every pothole?)... not wearing socks could get you a lecture fit for a 3 year old.... not many people saw this... they usually saw a very patient father.. almost absentee in his lack of discipline.... HA... HA....
when my papa was taking care of his parents before they passed.. people saw a strong man.. stoic in his role as caretaker... they assumed he was quiet and non reflective... what they did not have were my lunch time conversations with him.. in which he expressed that he was sad but happy that my nana cuca was in control of her life in choosing not to undergo dialysis... that she was making her choices known... sure they saw the strong man... i held this strong man as he sobbed as her casket was being lowered....when his father passed..i asked him if it was easier to loose him because he had lived such a very long long life... my brother and i were told it was not easy to loose him because he regretted not knowing him beyond a father role... he didn't teach him how to drive or do things father's did.. he worked hard for his family...and while my dad was appreciative he also wanted a "dad"....
you wouldn't know how important you were to him unless you wanted to.... his family was so important to him.. and more than anything he wanted a relationship.. a closeness... he reveled in saying "my sisters are with me," he was proud of the love he had for his family...and while it was so visible to me.. i wonder how visible it was to others... not everyone knows now to watch, wait and listen.... he proudly displayed blankets, meals and hats made for him... like saying "look how much i am loved, and look how much i love them"... did they know what that this is what he meant to say? do they know how hurt he would be to loose them in his passing.... my brother and i are a part of him.. and right now.. we are our only connection to him... that hurts
my cousin said it drove her crazy to watch him and i sit next to each other, both reading separate books.... "you guys are too quiet".... but we were watching and waiting... once.. we saw a humming bird stop flying.. it perched and sat still for a full minute.. it was amazing... and we would never have shared that moment if we weren't watching and waiting...
my point is... if you ever wondered about him.. if you ever wanted to know him better... know this... he probably wasn't who he seemed to you... he was so much more

Monday, June 21, 2010

father's day

it is the day after father's day... i avoided it yesterday... i think that the build up to it was worse than the actual day.... i was dreading father's day for weeks.. after every commercial that said "don't forget father's day" i would ask "how could i forget?"... i kept busy yesterday and i did pretty well... i had cousins, friends and my brother check up on me... i wasn't lying you guys... when i said i was okay :0)

i think what helped me was the memory of last year... living so far from home, i have missed many (too many) father's days... i sent cards and called...but last year i flew home to surprise him... he was beginning to have flank pain (although we didn't know it at the time, the tumor was growing back, into his flank muscle)... he was already down the rabbit hole of harder pain medication...he missed church that morning... my cousin picked me up at the airport...he was just waking up from a nap and we met in the hallway... he gasped and i hugged him too hard... he let a few tears out.. and in our fashion we both looked away.. leave it to us to suppress the moment.. yes.. i am my father's daughter... he told everyone who came over what a surprise it was to him.. and admitted he cried... i came and went a ton over the summer so i had just seen him a month before... he was truly surprised.... and there is nothing like the smile my dad smiles when he is surprised.. it is a huge grin and he kind of bites the tip of his tongue... the corners of his eyes crinkle...it's real... funny that i remember details of his face and expressions like that...
and i think that is why i was/am able to get through this... my dad was so present... so....there... that i have details to hang on to....